I had every intention of writing about my 10 year dream life today to start my Rachel Hollis Start Today journal. But I can't. I can't because I just today saw that my blog had a comment. Color me surprised because I have never seen that notification before and guess what? The comment was from March of 2017. I want to be furious but I'm just so damn sad because it was a comment on my post about Olivia. The post about my beautiful adorable little girl and the hell we went through when I was pregnant with her. This poor momma found my post as she was googling about the child she was carrying: a little boy who had the same short curved femurs that our little girl had. No other symptoms, no other traits, just that. She was going through all the same fear we were and I wasn't there for her. I am so happy my post found her and was able to give her some hope and some sense of "you're not in this alone" but I am horribly sad that I wasn't able to reach back out to her and show her life on the other side. I sent her an email today and I'm praying she sees it, that her child is healthy, and that that she has found her other side as well.
Olivia is perfect in every way imaginable; and she does have some medical issues that we have been struggling with this past year. She has pushed through so many obstacles but there are more ahead. We have learned that she has osteopenia. While we don't have a definite answer of why, we have some clues. We continue to see genetics, orthopedics, and endocrinology, and this child knows more about having blood drawn that any 4 year old ever should. We are letting her live her life with as little bubble wrap around her as possible and taking a breather from all the appointments while we decide our next steps and second opinions. It is not fatal, she is not in danger, but it is something that will need to be managed throughout her life. I don't know if it is related to the trouble she had in utero. I don't know if we will ever know the answer to that. But she is here. She is healthy. She is incredibly smart. She is a powerhouse and will move mountains. She is mine. And I thank G-d everyday for the chance to raise her.
Edited to add: I heard from the momma! She sent me a video of her and her adorable son and updated me on their lives. Her son was diagnosed in utero with OI - osteogenesis imperfecta - and she has become an advocate and voice in the OI community. She writes about it here.
Olivia is perfect in every way imaginable; and she does have some medical issues that we have been struggling with this past year. She has pushed through so many obstacles but there are more ahead. We have learned that she has osteopenia. While we don't have a definite answer of why, we have some clues. We continue to see genetics, orthopedics, and endocrinology, and this child knows more about having blood drawn that any 4 year old ever should. We are letting her live her life with as little bubble wrap around her as possible and taking a breather from all the appointments while we decide our next steps and second opinions. It is not fatal, she is not in danger, but it is something that will need to be managed throughout her life. I don't know if it is related to the trouble she had in utero. I don't know if we will ever know the answer to that. But she is here. She is healthy. She is incredibly smart. She is a powerhouse and will move mountains. She is mine. And I thank G-d everyday for the chance to raise her.
Edited to add: I heard from the momma! She sent me a video of her and her adorable son and updated me on their lives. Her son was diagnosed in utero with OI - osteogenesis imperfecta - and she has become an advocate and voice in the OI community. She writes about it here.
